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Towards FAIR Clinical Registries: A Privacy-by-Design Framework for Migrating Legacy Document-Based Clinical Reports to REDCap

Jeeva Sam, Romina Blasini, Patrick Janetzko, Khodr Tello, Werner Seeger, Raphael W. Majeed. Towards FAIR Clinical Registries: A Privacy-by-Design Framework for Migrating Legacy Document-Based Clinical Reports to REDCap. In Mauro Giacomini, Jaime Delgado, Theodoros N. Arvanitis, Elisavet Andrikopoulou, Arriel Benis, Gabriella Balestra, Riccardo Bellazzi, Parisis Gallos, Roberto Gatta, Daniele Roberto Giacobbe, Noemi Giordano, Maria Hägglund, Lars Lindsköld, Lenka Lhotská, Sara Marceglia, Enea Parimbelli, Lucia Sacchi, Paolo Soda, Lacramioara Stoicu-Tivadar, Pierangelo Veltri, Patrizia Vizza, editors, Opening the Personal Gate between Technology and Health Care - Proceedings of MIE 2026, Genova, Italy, 25-28 May 2026. Volume 336 of Studies in Health Technology and Informatics, pages 1521-1525, IOS Press, 2026. [doi]

Authors

Jeeva Sam

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Romina Blasini

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Patrick Janetzko

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Khodr Tello

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Werner Seeger

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Raphael W. Majeed

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