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Establishing Adaptive Governance in NFDI Consortia: Lessons Learned from Deliberative Forums with Patients on their Role in the Governance of the German Human Genome-Phenome Archive (GHGA)

Eric Apondo, Andrea Züger, Andreas Bruns, Katja Mehlis, Christoph Schickhardt, Eva Winkler. Establishing Adaptive Governance in NFDI Consortia: Lessons Learned from Deliberative Forums with Patients on their Role in the Governance of the German Human Genome-Phenome Archive (GHGA). In York Sure-Vetter, Carole A. Goble, editors, 1st Conference on Research Data Infrastructure - Connecting Communities, CoRDI 2023, Karlsruhe, Germany, September 12-14, 2023. TIB Open Publishing, 2023. [doi]

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