The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry - researchr publication authors

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Shamsi Daneshvari, Sarah Youssof, Philip J. Kroth. The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry. In AMIA 2013, American Medical Informatics Association Annual Symposium, Washington, DC, USA, November 16-20, 2013. AMIA, 2013. [doi]

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