Shamsi Daneshvari, Sarah Youssof, Philip J. Kroth. The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry. In AMIA 2013, American Medical Informatics Association Annual Symposium, Washington, DC, USA, November 16-20, 2013. AMIA, 2013. [doi]
@inproceedings{DaneshvariYK13,
title = {The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry},
author = {Shamsi Daneshvari and Sarah Youssof and Philip J. Kroth},
year = {2013},
url = {http://knowledge.amia.org/amia-55142-a2013e-1.580047/t-05-1.583941/f-005-1.583942/a-094-1.584270/a-097-1.584265},
researchr = {https://researchr.org/publication/DaneshvariYK13},
cites = {0},
citedby = {0},
booktitle = {AMIA 2013, American Medical Informatics Association Annual Symposium, Washington, DC, USA, November 16-20, 2013},
publisher = {AMIA},
}