Establishment of New National Rare Disease (Nambyo) Registry and Registry Guidelines in Japan

Hiroshi Mizushima, Mai Tanabe, Yasutaka Sugamori, Yoko Sato, Hiromitsu Ogata. Establishment of New National Rare Disease (Nambyo) Registry and Registry Guidelines in Japan. In Adi V. Gundlapalli, Marie-Christine Jaulent, Dongsheng Zhao, editors, MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics, Hangzhou, China, 21-25 August 2017. Volume 245 of Studies in Health Technology and Informatics, pages 536-538, IOS Press, 2017. [doi]

Authors

Hiroshi Mizushima

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Mai Tanabe

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Yasutaka Sugamori

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Yoko Sato

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Hiromitsu Ogata

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