Hiroshi Mizushima, Mai Tanabe, Yasutaka Sugamori, Yoko Sato, Hiromitsu Ogata. Establishment of New National Rare Disease (Nambyo) Registry and Registry Guidelines in Japan. In Adi V. Gundlapalli, Marie-Christine Jaulent, Dongsheng Zhao, editors, MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics, Hangzhou, China, 21-25 August 2017. Volume 245 of Studies in Health Technology and Informatics, pages 536-538, IOS Press, 2017. [doi]
Abstract is missing.