Review of Key Elements in Developing a Common Data Model for Rare Diseases: Identifying Common Success Factors

Filip Rehburg, Miriam Hübner, Sylvia Thun, Oya Beyan. Review of Key Elements in Developing a Common Data Model for Rare Diseases: Identifying Common Success Factors. In John Mantas, Arie Hasman, George Demiris, Kaija Saranto, Michael Marschollek, Theodoros N. Arvanitis, Ivana Ognjanovic, Arriel Benis, Parisis Gallos, Emmanouil Zoulias, Elisavet Andrikopoulou, editors, Digital Health and Informatics Innovations for Sustainable Health Care Systems - Proceedings of MIE 2024, Athens, Greece, 25-29 August 2024. Volume 316 of Studies in Health Technology and Informatics, pages 1396-1400, IOS Press, 2024. [doi]

Abstract

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